First, my story so far, and this will not be all of my story because I am working on a book. I have had the opportunity to share more of my story and experiences in the past few weeks as another disabling medical condition that is life threatening in nature was discovered through some testing that is nowhere near over yet.
Whenever appropriate, I do share my story. So that hopefully others will learn from it. It happened over here: http://www.pbs.org/pov/blog/docsoup/2016/04/andrew-wakefield-vaxxed-documentary-autism/. While I will give props to the author of the blog post for having the bravado to attend a controversy bogus film and then write a review about it, I wish that the film would quit being shown. It is dangerous at best and further perpetrates the myth that autism is damaged at worst.
My own story is that I was born with congenital rubella syndrome. My mom was exposed in early term when she was pregnant with me. Early enough that I somehow survived despite the fact that she had a very complicated pregnancy in the months that followed the exposure. As for the woman who exposed her? She lost her baby shortly after birth.
Congenital rubella syndrome is often lifelong with clinical manifestations that can occur later in life. I am just fortunate to have lived despite the exposure.
Mom always knew something was different about me. Always. Long before the first vaccine was given. Mom, like me, was diagnosed autistic late in life. She was diagnosed after me. Her autism is level one - mild. My autism is level two-three moderate-severe.
But what is autism you may say? Because you're so smart and you can communicate. Yes, I am smart, and yes, I can communicate. But that's not autism. Although I did have clinically significant speech delays and do have trouble with functional communication. Autism varies from person to person, hence the reason it is a spectrum disorder. It impacts social skills, imaginative play, and can be comorbid with sensory processing disorder which can lead to a lot of meltdowns.
Here's the response to AutismDadd who had the audacity to try to invalidate my diagnosis today (two months after I shared my story with the writer of that post linked above):
AutismDadd, first you cannot spell. So what right do you have to try to invalidate anyone? You're not a psychologist. Only psychologists are allowed to diagnose. Only medical doctors are allowed to diagnose. As long as stupid people like you exist, autistics will never have acceptance in society. Acceptance. Acceptance means that autistics like me are accepted as the people we are and allowed to attend church and school and be gainfully employed as long as they are physically able. They are not judged for being different or told to stop their fidgets or to be something they simply cannot be. AutismDadd, I am clearly a threat to you somehow because I clearly don't fit in your little preconceived box of what autism should be. And that's good because it means all the hard work my mom put into me getting therapy paid off. It means that those who invested in me had a return on their investment because I don't fit your ideas. And that's wonderful. I am clearly also more intelligent than you will ever be. Because I don't insist on trying to bully and invalidate people or their diagnoses. And I definitely have a lot more compassion than you ever will. But maybe that's because I am sick and tired of idiots like you who think they have the right to try to invalidate people. Am I sensitive? Yes, but it's because of idiots like you who falsely judge people and try to invalidate them that I am now an advocate for those same people and a self-advocate. I may not get paid for my work in advocacy, but I love what I do. Because hopefully, one day, there will no longer be idiots like you trying to invalidate people or their diagnoses. Oh, and you have been flagged and reported to Disqus using their form, something I wish Facebook had when reporting. I looked further into your comments. You're always an idiot and a jerk from what I could tell. And guess what? After this, I am done with you. Period. So say what you want, but you get no sympathy from me because I don't have time for that crap.
Anyway, like I said, I am not sharing too much of my story beyond this on here because I am trying to work on a book. And here's something I do know. If AutismDadd tries to come at me on my blog, I can ban him.
If nothing else, I hope more people learn from my experience and learn how to better advocate for autistics and autism acceptance.
Sunday, May 29, 2016
Sunday, July 19, 2015
1. It is insulting. It makes it sound like our disabilities are diseases when they are not. I have asthma. Yes, it is a disease. Of the lungs. But I am asthmatic. I have autism. Although a processing disorder, it is not a disease. I am autistic.
2. It is degrading. People first language feels degrading because the people who insist that we use it are belittling us for using identity-first language.
3. It strips away my identity. Again, it makes our disabikities sound like a disease. It doesn't recognize that many of us have accepted our disabilities as part of who we are. I have autism, but I AM autistic. I identify my autism as an ingrained part of what makes me WHO I am; therefore, I identify as autistic. The Deaf identifies themselves as a culture. When you insist on calling the deaf "people who are deaf," you steal their cultural identification. They are Deaf, deaf, or deaf people. I am hard of hearing or a hard of hearing person.
4. It is clunky. Just as it says. People first language uses too many words. This is worse than our cultures.
5. It is awkward. Refer back to number 4.
6. It is not being used by those who actually have disabilities. If you ask most of us who actually have these disabilities and have found our way of communications, we will all tell you first hand that "people-first" language, though originally well-meaning, is the most offensive language we have ever encountered. We will often correct you and tell you what we want to be called and it is usually always identity-first language. He is autistic. She is deaf or she is a deaf person. He is a cancer patient. She is an ADHDer. Do you call an artist a person who has artistic abilities or a teacher a person who teachers or a musician a person who has musical gifting? No? Then stop trying to do it to us in the disability community. We don't need that.
Saturday, February 28, 2015
As I was checking on another blog, I found a threat posted to this blog because I blew the whistle about some nasty things that I have observed continuance of. Thank goodness, Facebook has finally allowed people to block pages. It was past time since one can no longer see page administrators. I marked the threat as spam so it could be deleted. I will not be threatened by anyway for anything when it comes to journalistic integrity and reporting the truth on any blog that I write. Anyone who threatens me will be considered a spammer and a threat to the principles of freedom of speech and expression.
Tuesday, March 4, 2014
It is time that I take serious action about something. And I have just done a level three escalation about the situation to my local authorities.
First, I am going to explain something.
Healthcare.gov has a Facebook page. When it first began, the administrators were very diligent. People seeking information could go there. People who managed to have success with the website could share their stories there. Everything was going well.
UNTIL some of the so-called "conservatives" began harassing and bullying these people. Yes, you read that right. Harassing and bullying.
Now what do you do if you are being harassed and bullied? You block the person right?
So that has been happening.
Only problem - these people that are being blocked are turning around creating FAKE pages so they can't be blocked, and their pages are being created with one purpose: HARASS and BULLY.
It is a violation of the Facebook Terms of Service. They know it and they don't care. It is illegal. They know it and they don't care.
Report the page. Facebook does nothing.
Report the comments. Facebook might ban the person behind the page for 12 hours and then the COWARD behind the FAKE page is right back at it.
And it is TARGETED.
Here are some of the page names:
Society for the Real - comments on just about everything and is the one that warranted the escalated report today due to the fact that guess what, I wasn't even on the Healthcare.gov page today except to like the story they posted about an individual who was saved from bankruptcy because she got insurance his year. And when I looked at it again, I found that he had high jacked a post that was made in a group and reported over there. I will provide the photo evidence. The post asked how it was even legal for them to be doing what they are doing when what they are doing is in clear violation of the Facebook Terms of Service.
Other FAKE pages that have been set up for the sole purpose of bullying and harassing include:
Tea for America
Women Against Obamacare
Hoolio Mastigo, M.D.
Big Girl Panties
Not voting for Monica Lewinsky ex boyfriend's wife
The Well-Armed American
Affordable Health Insurance
I Love My Country, Don't Trust My Government
Tabatha Travares - resurrected herself as a page after being blocked as a person - still harassing me
Non ACA Compliant - using the same exact language as Society for the Real
Blondes United - Suspect this was created by the THREE Anna Blondes
Society for the prevention of liberal lunacy (absolute lunacy itself)
There are many others as well. I challenge anyone to go on the Healthcare.gov page and see what these "conservatives" are doing and then seriously ask themselves why on earth would anyone with a brain or compassion ever vote conservative again after all of that bullying and harassing going on?
Blocked people from that page include THREE profiles under Anna Blonde, Leigh Lajaunie Wilkerson, Shelby Mustang, Daisy Apple, Marianne Ashton, Kane Roberts, John C. Kirsch, Malika Holmes, Peggy Politics, Andy Doyle, Mary C Michaels Ceo, Greg Romane, Barb Schaub, Valarie Murphy, Jessica Neveton, Kathie Church, Happy Ascanbee, Pamela Weishuhn, Tim Sanders
Wednesday, August 22, 2012
Oh my word! The last several months have been a whirlwind for me! You see, I learned I have autism spectrum disorder, more specifically Asperger's or high-functioning autism. And I still have a lot to learn! As do those around me. Acceptance. Awareness. Education. Understanding. Inclusion. Those are the words that I am challenged with right now. Social skills. Something that is challenging. Communication. Something to be improved in some ways more than others. That's all I really have to say right now.
Sunday, October 16, 2011
I received a BzzKit of two full size products in the new Burt's Bees Sensitive Skin Line - a cleanser and a moisturizer. It is one of the perks of being a BzzAgent.
I had high expectations of the products since I already use Burt's Bees and have a passion for their products. Being that I have sensitive skin, it was even more of a plus for me.
I tried it out and I loved that the products did not further irritate my already red and inflamed skin. I do plan to buy more of it in the future and spread the word about them as well.